I didn't post on #worldibdday because it depressed me. But now that I'm home and reflecting back on my #WDW trip, I figure I might as well talk about another health update. You see, I never thought that one day I would wake up sick and never get better. I may have short periods of remission, but other symptoms take a nasty toll on my body as well. I've been struggling with secondary complications from UC since last year. In January I found out that the treatment helping keep my UC in remission (Remicade) was causing drug-induced lupus. This explained why I've been feeling like garbage since the end of 2015. While my most recent blood test showed my lupus is clearing up, I still have the symptoms such as fatigue, dizziness, heat sensitivity, nausea, joint pain, to name a few. Traveling and stress makes some conditions flare up. Last month I had my first dose of Entyvio (an IV treatment to replace Remicade). I had such high hopes but that drug ended up making my life a living hell. It somehow flared up all my lupus symptoms, and weeks later I developed an infection and severe pain that landed me in the ER. That trip to the ER happened 1 week before I was supposed to go to Disney. I had already paid an obscene amount of money to go, and yet I had mentally prepared myself that it wasn't going to happen. By some miracle the antibiotics my doctor (who has no idea WTF was wrong with me) blindly prescribed me worked. I felt well enough to travel with the intention to listen to my body, and not overdo myself by going to the parks. I was able to find a good balance between visiting the parks and resting when I needed it. However I had bouts of feeling ill. I couldn't eat a lot on the entire trip. My joint pain was bad. I missed out on special memories I could have been making with my family because I chose to go back to the room to rest. I was anxious and the FL heat was killer. So just because I am smiling and looking "fine", doesn't really mean that I am. This is what it's like to have an invisible illness. You deal with things 1 day at a time. You try to enjoy life as much as your body allows... because, fuck it, I'm already planning my next WDW trip. 💅🏼
Already missing this view.
Bubbly fireworks 🥂🎆🎇
VIP viewing area for Illuminations & sparkling dessert party 🥂🍰🍨
Coke icee because omfg it's hot AF. 🔥 Oh and hi, Animal Kingdom.